02.15.16

Last week’s leg surgery went well. Her surgery was at 7:30 in the morning, and we were home by noon. She has two very small incisions on each side of her knee. The doctor removed two-thirds of her growth plate which should prevent further growth of the left femur. And in the next two years, the right femur should catch up in length within 1cm, which is typical for the average person.

She is using crutches for pain management and wears an immobilizer when she is standing. The crutches are challenging. She’s working really hard- using muscles that are weak from chemotherapy. Honestly, I didn’t expect the pain to still be so intense a week out. We see the surgeon on Wednesday. Looking forward to checking-in and making sure we’re on the right track.

Thursday, Leah had a pain in her thigh, quite a distance from the incisions. We checked with the surgeon, and he suggested we head to the ER to rule out a blood clot. Leah’s recent chemo, Avastin, increases her risk. After a long night, 11:30PM to 5:30AM, an ultra sound confirmed that there was no blood clot. It was one of those things… I knew it was highly unlikely, but at the same time I would go insane if I didn’t know for sure. In the end, I was glad I had it checked. After your beautiful, smart, perfectly healthy child is diagnosed with a rare brain tumor in a rare location, “highly unlikely” doesn’t mean much.

Please pray for continued strength, patience and healing. 

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