Mission Accomplished

We all made it through the first day of school! 

  

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Thank You

You guys are AWESOME!!! This past week, a check in the amount of $10,044.58 was sent to Akron Children’s Hospital Neuro-Oncology Fund in honor of our brave, strong girl. Thank you so much for your generosity and helping spread the word about our Childhood Cancer Awareness campaign. We never, ever imagined that so many people would buy a BraveStrongGirl shirt!!! We can’t wait to see people sporting their shirts in September! Please pass along our most sincere, heartfelt thanks. ❤️

Leah had chemo #15 yesterday. We moved treatment to Monday with the hope that she can attend the first day of school on Thursday. Her next treatment will be Thursday, September 17th. Leah is feeling some relief from the pain in her ankles as she grows accustom to wearing the orthotics in her shoes. Tap and Jazz start early September, and we are praying that she’ll feel well enough to participate.

Yesterday, Leah’s doctor asked that we start thinking about the next step in her treatment. She feels that Leah may not be able to tolerate this regimen much longer. We will begin to research all of our options. We would really like to continue this regimen until the next MRI in October, which is a good possibility. Please continue to pray for Leah’s complete healing.

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A bump in the road…

Last week, we received some news that was overwhelming at first. I can compare the feeling to one of those mornings when a lot of crummy things happen in a row. You wake up late, then you can’t find your car keys, then you reach for your coffee and realize you left it sitting on the kitchen counter. And for a second, you think, “Are you kidding me?” Then the rest of your day pretty much goes as planned, and you realize that your bad morning wasn’t so horrible after all.

Wednesday, we had an appointment with Dr. Ritzman to check Leah’s scoliosis. Thankfully, the scoliosis has not progressed to the point that she needs to wear a brace. However, after discussing Leah’s symptoms and taking a few x-rays, the doctor determined that one of Leah’s legs is 2.5 cm longer than the other. We will have a bone scan this morning, and a 1cm lift was added to her orthotics, which we will pick up this week. The doctor explained that it is likely Leah will need surgery to close the growth plates in her longer leg. He also said the scoliosis and discrepancy in leg length is unrelated to chemotherapy or the tumor. I’ve done some research in the meantime, and I’m reading just the opposite. Now it’s definitely possible that I wasn’t completely hearing the doctor, because I was having a major “Are you kidding me?” moment. But now that I’ve had a good night’s sleep and some time to gather my thoughts, I have a long list of questions to be answered.

The news was upsetting, but there really was no time to pout about it. Chemo was scheduled for the very next day, so we decided to take one thing at a time and focused on getting our ducks in a row for Thursday. And soon enough, the news didn’t seem as horrible as it did that morning.

Chemo on Thursday went as planned. This time around, the side effects have lasted longer than usual. She has an upset stomach, and she’s achy and tired. Hoping she wakes up feeling better. Please pray that today’s bone scan isn’t too stressful and that we get good results.

My friend sent me this quote on Thursday morning. I think I love it, because I just know she was laughing when she said it.

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Chemo #14

Chemo #14 is scheduled for this Thursday. We will have labs on Wednesday to make sure she is ready, but she should be in good shape after the three week break. 

We’ve had a busy schedule since seeing the physiatrist on the 21st. Still no conclusion on the source of her ankle pain, which is very frustrating. Leah has been attending PT one day per week, but the doctor recommended a second day of aquatic PT. We haven’t started that yet, because that department is not returning my phone calls. We also had orthotics made for Leah’s shoes, which will be ready next week. And this Wednesday we will see the doctor about her scoliosis. Hoping we start to see a dramatic improvement in her ankle pain by the end of August. In the meantime, Leah has been swimming at the pool and the gym, which is the perfect activity when it’s difficult to be on your feet.

Thank you so much for supporting and sharing our BraveStrongGirl campaign! We’ve sold 264 shirts, and there are still 14 days left! It’s been fun to watch the number grow, and we can’t wait to see everyone wearing their shirts! 

Bonfire sent me this image that we can use to spread the word, if you’d like to post it to your social media 🙂