We’ve Officially Launched! Whoop! Whoop!

We are super excited to share that we’ve launched a Childhood Cancer Awareness campaign and fundraiser for the Akron Children’s Hospital Neuro-Oncology Fund!

In 2014, we had a mini t-shirt campaign. This year, we are going big! We will support our brave, strong girl with these Childhood Cancer Awareness shirts, at the same time raising funds for the Akron Children’s Hospital Neuro-Oncology Fund, the very hospital that takes care of Leah.

Click the link below to purchase a BraveStrongGirl shirt to wear during September, which is Childhood Cancer Awareness month.

https://www.bonfirefunds.com/bravestronggirl

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The campaign closes on August 16th, and you will receive your shirt approximately fourteen business days after the closing date.

We are counting on our friends and family to spread the word via email, Twitter, Facebook, and Instagram. Leah’s hoping Ellen might even see the campaign and wear her shirt on TV! You never know!!!

Email me with any questions: gnmerr@yahoo.com

Thank you so much for helping us spread the word!

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Chemo #13

It’s been a long, busy day. We had an ultrasound to check Leah’s kidneys at 8AM, followed by labs and chemo. The new plan is to have treatment every three weeks, instead of two. This will be less stress on her kidneys. At the end of August, we will have to juggle some dates so she doesn’t miss the first day of school. The doctor will monitor Leah’s kidneys closely as we continue treatment. Next week, we will see a physiatrist to fine tune our physical therapy plan. Onward and upward…

MRI Results

Today’s MRI results were identical to the images from April. There has been no change over the past three months. Not bad news in the world of gangliogliomas, but we were hoping for better…

Chemo is tentatively scheduled for Thursday.

Chemo On Hold

Leah will not have her scheduled treatment this week. Today’s lab results showed an unacceptable amount of protein in her urine, which means her kidneys are not tolerating the chemotherapy. The doctors will monitor Leah, and next week she will see the nephrologist. It’s important to delay chemo to prevent irreversible damage to the kidneys. Based on the findings of the next week, Leah’s chemotherapy schedule may be adjusted to every three or four weeks. Dr. Rush assured us that good results are still possible even with this change in the regimen.

Leah’s MRI will still take place this Thursday at 8:30AM, as scheduled. Please pause with us at 8:00AM on Thursday and pray for Leah’s complete healing, and that she feels strength and peace during her MRI.

Thank you for your continued prayers! ❤️