Chemo #9

A week ago, Leah decided to get rid of the little amount of hair that she had remaining. We made an appointment with the girl who usually cuts her hair. Not at all what a parent might imagine. Leah was all smiles, and “loved” her new look. Looking in the mirror, she no longer saw a patchy head of barely-there hair, but instead saw her beautiful face. Now she can wear a headband, a hat, a scarf, or not. Most days she doesn’t wear anything on her head, and there is never a moment of hesitation. That is an incredible gift. There’s already new growth, but we’re not sure if the new hair will hang on. Either way, we’re in a good place.

This past Thursday, Leah struggled with the idea of having her chemo and starting the cycle of not feeling well over again. I told Leah that I could not resist her cuteness and tried a little bribery in the gift shop on the way upstairs. He was a soft, cuddly brown and white puppy, and he did the trick for a short while. 

We ended the day with a quick visit to the art show in the Expressive Therapy Center. Leah had a painting on display. The theme was celebration, and her painting was a picture of her end of chemo party that took place in February of 2014. At that time, we believed Leah’s tumor had the BRAF mutation. Based on the mutation, chemotherapy was crossed off our list. Unfortunately, pathology was unable to confirm the mutation in the fall of 2014, disqualifying Leah for new treatments. So here we are, back to not-so-good, way-too-old chemotherapy. We decided we’ll just have to have another end of chemo party!


Confidence is Beautiful

We checked chemo #8 off the list this past Thursday. Leah was an absolute champ for her IV poke. Our good friends visited, and we squeezed in a game of scrabble. We were explaining the directions, and then the girls figured out it was “Words with Friends” in a box. Say no more. Leah felt more nauseous than usual at the end of this treatment, so we ended the visit with a first-class wheel chair ride to the car. 

We were very sad to learn that Dr. Rush’s PA, Amanda, is moving. Amanda is the person we communicate with on a regular basis regarding meds or concerns. She’s also there for all of our appointments. Our last visit with her will be on the 14th, and we will miss her so much. Whoever takes her place has seriously big shoes to fill.

Leah has lost most of her hair, and she’s styling some new scarves lately. Had to share this beautiful pic that Leah edited with Color Splash and posted to Instagram. (Disclaimer: She doesn’t really wear the red lipstick.)