St. Baldrick’s

Our friend, Brian Knepp, is a St. Baldrick’s Shavee! He is shaving his head to raise money for childhood cancer research. St. Baldrick’s is our favorite foundation. Haven’t heard of them? Check out the St. Baldrick’s website.

This is the link to Brian’s page on St. Baldrick’s if you’d like to donate.

Thank you, Brian!!!


“Fine” Fridays

When Leah woke up this morning, she was feeling achy and got sick. But after a dose of Zofran, she felt better and has been able to enjoy this frigid snow day. We think Leah will be able to attend school the day after her treatment, at least in the afternoon. She explains that she doesn’t feel normal the day after chemo, but she feels fine.

Yesterday was Leah’s thirty-ninth treatment. The thirty-ninth time toxic drugs have been pumped into her body. And every time, I am amazed by her resiliency. Even when she’s feeling crummy, she’ll manage a twirl across the kitchen or a quiet tap step in her socks.

A dear friend gave me a pendant that says, “she knew she could do anything because her strength came from Him.” Philippians 4:13. There is no doubt.

Snow Day

I thought Leah would be a little disappointed that she had chemo today, since school was cancelled. Ends up she was happy that she wasn’t missing school, and that she wouldn’t have any make up work.

Finally, today’s poke proved to be what we had promised from the very beginning. We applied Emla to a few spots on her arms and hands so she would be numb. Then the PICU team used an ultra sound to find a good vein, and the job was done with only one poke. Thank goodness! The fact that the IV was in her left arm was icing on the cake. Her right hand was free to be busy for the rest of the day! The art therapist visited, and Leah created a painting for the upcoming Arts Show at Akron Children’s Hospital in May. The theme of the Arts Show is “Celebrate,” so Leah painted a picture of her Brave Strong Girl party that celebrated the end of chemo last February. Gracie and Jordy visited during the last hour and joined us for music therapy. The song of choice was “Bad Day.” (Even though it really wasn’t.) Leah played the Ukulele, the therapist played the guitar, and everyone sang along. Except me, because a mom signing is weird and embarrassing…

This week, we are increasing one of Leah’s medicines in an effort to reduce headaches. The stomach cramps are a side effect of the Irrinotecan, and that will be something we just have to work around for the remainder of this regimen.

HGTV, Here She Comes…

Leah met some very special people at the hospital, who invited her to design four exam rooms. She chose the paint colors and the decals! There was a special surprise when we visited to see the final product. One of the rooms has been officially named “Leah’s Room”! Look out, Aunt Dena!